to the Hey everyone! It’s time for another update from us. 🙂 There’s been a couple fun things that’s happened since we last spoke, so I guess our lives aren’t ALWAYS boring- but to be honest, for us it’s mostly been boring and a lot of sleeping. Sleep seems to be the main event of our lives, to give you an idea- I sleep at least 12 hours a day and up to 15 hours. Dan sleeps 9 or 10 hours a day usually (he’s still not feeling the best), so for us to actually get out and do things can be a challenge, simply because we’re just trying to fight to get out of bed.
Anyway, we were really blessed a few weeks ago with an awesome lunch date. It was one of those “once in a lifetime” kind of things. Part of our Japamily came to the United States and was only a few hours away from us, so they met us for lunch. That’s right, they flew half way around the world and met us for lunch and some shopping. We felt special. The last time they saw us, I wasn’t hardly able to stand on my own and while I still have seizures and I get tired, I am doing far better now than I was last year when I left. Our time together was precious to say the least.
Mrs. Esther had taken me under her wing when I was in Japan and showed me how to get around a bit off base, and Dani is like a little sister to me. Dan and I both talk to Dani frequently still via Facebook, but it’s not the same as getting to see them face to face. When we were waiting for Dan to get off the boat and trying to figure out what was going to happen with me health wise, Mrs. Esther gave Heather a break and helped to care for me. So to see them again was truly beyond words, and Dan and I hope to see them again.
Let’s see, there’s more. 😉 I’ve recently had a health setback. But it sounds more like an advancement. I’m off all medication related to my Lyme. This is because I went to the ER for a seizure that lasted for 3 hours. The good news is, there’s no brain damage from the seizure (that’s always the concern), the bad news is, they can’t seem to figure out how to control my symptoms, even with all the medications and the PICC line. So my doctor has decided to see if my Lyme is still active, but to to do that, I have to be off medications for a month and then go through a Lyme culture (blood test where they’ll actually grow Lyme- it’s really cool and the most accurate Lyme test available) next month. So until then, I get a break from my 20+ pills a day, and I’ll take it, even if it is most likely temporary.
It’s been a weird time being off meds. I can tell something is off with me, but it’s hard to fully put my finger on it. Sometimes I ache, sometimes I don’t. Some days I have energy, some days I have none. I expected to feel a lot worse, but it’s only been about two weeks, and I’m just now starting to really go downhill, so it will be interesting to see how the next 2-2.5 weeks go.
I’ve had some energy and when we had Beka and Keke come to visit, I felt somewhat normal even, just more tired. It was great to see them, it had been far too long. We went to Gettysburg and did some wine tasting. However, the day out in Gettysburg wore me out so the next day we had to tone it down and just do lunch and a little shopping here locally. I just can’t do things like I wish I could. Luckily my friends love me despite not being able to do everything we wanted to do, and they work with me.
Finally, just the other night Dan and I were able to see Lee and Tina, my youth pastor and his wife who are now missionaries in Haiti. Lee officiated our big wedding in August of 2014, and it’s been a long time since we’ve seen them. They had a large open house at a local church, so Dan and I were able to go and catch up with not only Lee and Tina but a couple other people from the area that we haven’t seen in a while. It was truly uplifting and great to see them.
So, to those of you who are faithfully praying for us, thank you. Please continue to do so. It’s a pretty crazy ride that we seem to be on with my health. I never know what’s coming at me next. Dan has been a real trooper through all this, it’s not been easy to watch the good days followed by bad days. Please continue to pray for us as we both are under the weather and it is difficult when both people in the household are sick at the same time. Also, please pray for wisdom for my doctor as we progress with me treatment since I am not responding the way he thought I would or as quickly as he had hoped- hence the essentially restarting with the Lyme culture coming up, which has me nervous. Please pray that Dan and I would continue to be brave in this very long trial that, in all honesty can be very scary at times, that regardless of how we feel, that we would continue to put our trust in the One who is in ultimate control and that He would use this for His honor and glory. Thank you for walking along side us during this journey.
Until Next Time,
De